I got a call yesterday from my neurologists office regarding the MRI I was waiting for approval on.
So I have an appointment on Monday morning to have the MRI done and hopefully an answer to the strange way my head has been feeling. Remember the whole Spinal Tap, Can’t sit down to blog, Stand up Vlog week?
In case you missed it, I have been experiences this strange head rushes. The best way to describe it is, imagine a power surge in your head. I get a rush, my vision dims like I am going to pass out, and then it’s gone. This has happened at different times and I cannot put my finger any trigger.
It’s like when the air conditioner turns on and all of the lights dim, that is what it feels like in my head.
After the MRI, I am waiting to get the approval for an EEG. After that point if nothing is found we may need to try a whole different approach. I am just thankful that I found a neurologist who wants to help me any way she can.
In more medical news, I have scheduled another blood draw next week for my up coming endo appointment. This is the blood draw that will prove if I am a type 1 to my endo. Because, he doesn’t believe me apparently. And I’ll see if the CGMS and Symlin has truly helped my a1c. I am actually looking forward to the appointment.
I cannot believe World Diabetes Day is in 2 days! I am so nervous and excited and nervous. Did I mention nervous? I hope you like my surprise.
15 comments:
My old endo had that done too... cause he apparently thought that I might be T2...even though I was diagnosed at 4 yrs old. But hey, what do we know, right? ;)
Awwww, This all sounds like so much fun... NOT! But you will hopefully get answers about the 'rushes' you're feeling.
I was dx-ed in 84 at the age of 28. but have seen my c-peptide test was under 0.5 picumoles, was 'Too low for the lab to read'. Not sure if they'd run a new one. or if it could change. Most likely when I turn 55, Medicare will take over and I'll have to get another done.
It drives me nuts to know your endo doesn't believe you're type 1.
I hope the MRI provides some answers for you. It really sucks to have medical problems without knowing what's causing it. That's how it was with my frozen shoulder for almost 2 years. i was so stinking relieved when I got a correct diagnosis from like the 5th specialist i went to see about it, and then got treatment.
Preface: I am not a Dr:) just sharing. My son's friend was having double vision and sometimes balance issues, I believe...can't remember all his symptoms. After an MRI, they've diagnosed it as Migraines! Weird thing is, he has no headache's with them! Hoping you get answers soon.
Good luck with the endo and I hope everything turns out just perfect with the MRI. Take care.
Glad you're about to get some answers, I hope. An acquaintance with Meniere's disease was describing an attack and sounded awfully like what you have been dealing with.
And oh goodness, silly doctors.
My husband has that rushing when he stands or sits. Addison's disease. A byproduct of Type 1 diabetes and lovely autoimmune disorders. Rare, but causes trouble w/your blood pressure, your ability to deal w/stress, and melatonin. I have a mild heart problem and get that too. I stand up in the morning and wow let the fast rushing star show through a tunnel begin. Our hearts go out to you and I hope that you start feeling better soon. Let us know how it goes and what it is.
OMG, why in the world doesn't your endo think you're Type 1?
Good luck in finding the answers to your head rush. Hopefully it isn't caused by anything serious.
I don't know what makes me more angry - the fact that you are STILL waiting for your MRI (which should have been done months ago) or the fact that you have to prove to your endo that you are T1. Sometimes I really hate health care.
George, I'm sure that answer can't come soon enough... hang in there.
And, about your endo's needing confirmation that you're a type 1 -- I think some docs just can't accept a diagnosis unless they make it themselves. So maddening.
Have you heard the one about...
So, there's a long line to get into heaven and people are waiting and chatting. All of a sudden, this large man with a trailing white beard comes rushing past from the front of the line, clipboard in hand, looking determined to get to the bottom of something. One of the people in line turns to another and asks, "Who was that??" And the person says......"Oh, that's God. He thinks he's a doctor"!!
Guess you have to use humor to get through the insanity of the medical field.
I was diagnosed with T2 4 yrs ago and not until I visited an endo, was my diagnosis changed to T1 and I have used insulin ever since.
So if he doesn't think you're T1, will he switch you to pills?????
Sheesh...
All the best, George, on the MRI, etc. Hopefully the answer will be found. Nothing worse than not knowing.
George, I know the waiting is the worst! Will you have to go in the tube, or is it open? It's time for some answers!
I believe I am going into the tube. Yay.
I just talked to my doctor and was told that the EEG she scheduled was denied by my insurance. I hate them.
MRIs are not fun but hopefully will provide you with some answers about what's making you feel that way. You have a lot going on next week and I wish you the best of luck for everything! Thinking good thoughts for you :)
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